‘Sudden Adult Death Syndrome’ families supported in mini-marathon by CRY
Team CRY Ireland (Cardiac Risk in the Young), the charity which supports families affected by SADS (Sudden Adult Death Syndrome), came together to raise funds on Monday’s VHI Mini Marathon. Among the runners for CRY was Clare Scanlan, who lost her son Darra aged 16 in 2011, and knows first-hand the work CRY Ireland do.
“The money raised for CRY Ireland today will go directly towards helping families like me who have lost a family member due to SADS,” she said.
“The charity offers support and free screening to families and really relies on donations and fundraising to keep operating.
“It is a small charity that helps so many people and I am so proud to be here to raise awareness for SADS and CRY.
“So many families are affected by SADS each year and need all the support they can get.”
As the charity’s biggest fundraiser, monies raised from the mini marathon will be used to fund the activities of the Centre for Cardiac Risk in Younger Persons (CRYP) in Tallaght Hospital which provides comprehensive cardiac evaluation of those who may be at risk from SCD either because of family history or worrying symptoms. The service provided at the CRYP Centre in Tallaght Hospital is available to anyone in the country (via GP referral) and is free to the patient.
The Centre currently receives no direct Government funding. Lucia Ebbs Fundraising Manager at CRY said: “We depend heavily on this to ensure we can continue to provide the free screening service in Tallaght Hospital.
“Often smaller charities are forgotten about when it comes to events like this, but luckily for us we have a growing number of supporters each year who help us support up families who have lost a young son, daughter, brother or sister. The funds we raise today will also go towards screening anyone who may have lost a relative to SADS. We are so proud and thankful to everyone who ran the Mini Marathon for CRY Ireland today.”
CRY is an Irish registered charity, which was founded in 2002, that supports families who have lost a relative to sudden cardiac death (SCD) and helps raise awareness of the conditions that cause it.
For more information see www.cry.ie
More about Sudden Cardiac Death
- An estimated 60-80 people aged 1-35 years die of SCD every year in Ireland
- SCD may occur because of underlying heart muscle abnormality, electrical disorders, or other structural problems
- In approximately half of cases, the cause may be inherited – close relatives may have a 1 in 2 chance of inheriting the same condition and may also be at risk
- Conditions that cause SCD cannot be cured, but if diagnosed risk of death can be significantly reduced
- The best treatment for those potentially at risk includes expert assessment, access to genetic testing and psychological support and counselling – the CRYP Centre in Tallaght is the only clinic in the country that provides a complete service, and it is free to patient regardless of where they live.
- Almost 1500 patients can be seen each year in the CRYP Centre.