By staff reporter
EPILEPSY charity Sudep is highlighting the importance of The Epilepsy Deaths Register.
The first register of epilepsy deaths in the UK, it launched last year and has been providing researchers with vital clues that could help find better treatments for people with epilepsy, and prevent Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy deaths.
Karen Osland, Deputy CEO of SUDEP Action told the Irish World: “Registers of epilepsy death are an important new development in work on prevention across the world.
“It is necessary that all deaths are reported so that researchers can pick up all the vital details they need to fully understand why these deaths occur and how they can be prevented. I urge anyone with information about a death to contact our register via www.sudep.org.”
The site has already received 310 registrations, each helping researchers gain insight into why a person died, and how these unnecessary deaths can be prevented.
The Epilepsy Deaths Register has made research easier and cheaper for research teams, and provides bereaved families with a chance to help those teams by providing key information only they could have.
A common serious neurological condition, epilepsy is responsible for 1,150 deaths in Britain every year. Of these, around 500 are SUDEP deaths – sudden and unexpected.
See www.sudep.org or call 0330 088 1220.