NEWS — 13 February 2014

Seanie Nammock

By staff reporter

The Kingdom Bar, Kilburn will be fundraising for the Irish Kidney Association and FOP Action on Friday, February 28 with a 24-hour darts tournament.

The tournament will kick off on the Friday evening and finish 24 hours from when the first dart is thrown.

Linda Kissane of the Kingdom Bar, also a member of the Kerry Association, told the Irish World that she has wanted to organise such an event for a few years now.

She said: “I am quite close to a number of people who have been deeply affected by the difficulties experienced as a result of both FPO and kidney disease. In the past, we have supported Sinéad Nammock, sister of Seanie Nammock as she fundraised over £40,000 worth of donations for the research centre attempting to find a cure for FOP.

“The IKA is an important charity for us as a number of our customers and close friends have been touched by this disease and we feel it is crucial to support Ireland based charities. We welcome anyone to participate and would love any kind of support on the night. We will be taking sponsorship on the night and in the run up to the event.”

The Irish Kidney Association is a charitable voluntary organisation dedicated to meeting the needs of renal patients and their families and carers, living with and affected by end stage renal disease.

FOP Action is an organisation that seeks to raise funds to ensure the continuous research regarding the genetic disease Fibrodysplasia Ossificans Progressiva. The disease affects an estimated 600 people worldwide, which causes the victims muscles and tendons to turn to bone, essentially forming a second skeleton in the sufferers.

The FOP centre requires £120,000 worth of donations every year to continue its research and study. London-Irish sufferer, Seanie Nammock’s family have strived each year to fundraise as much as possible to ensure that the research conducted by the University of Oxford continues.

 

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